Displaying items by tag: preterm birth
Friday, 25 July 2014 11:21

Creative Preemies

Light ... by Stacie McClinchie



A song has been sung throughout our lands for many generations, the story where a young boy saved our world from a hell-like creature. It tells of the child’s sacrifice to save his land, to help the world prosper once more, for this beast took the greatest treasure we had. It kept it in a chest inside a volcano to the south of our border, and we knew it would take a special kind of person to bring it back.


For years, the peaceful lands of Garduin had been plagued by a menace in the form of a dragon. Even now no one knows where it came from, or why it suddenly attacked anyone who passed through the range near its new home. No one had been brave enough to defeat the beast, for its breath was like the acid rains in the north, its soul as twisted as the dreaded southern forests. Armoured plates covered the massive beast and no amount of metal could break through the tough scales.


This dragon had no name, but whoever could defeat it would have the key to our treasure. No one came to help us. So, a young boy of about nineteen winters took up the challenge. He, too, has no recorded name—but he is our saviour.


Even in his youth he knew facing the dragon in its home was foolish, so he lured it out with offerings of gold. No one thought the dragon would be curious enough to investigate the boy – it, like so many of us, didn’t think that it could be bested by someone who couldn’t even wield a sword properly. He had faith, as the songs say, and the dragon did come.


The battle of insults was long and soon the dragon grew bored—it didn’t expect the boy to have another offering though. We know now that milk is the only liquid that will put a dragon to sleep. Large barrels of it awaited the dragon as it found the place the boy had described once he told the beast of a greater offering of peace.


As the massive beast slumbered, the boy found the dragon’s domain and took the treasure for himself. He didn’t care that the dragon had woken a half-day later to find its treasure stolen—the beast was not as stupid as many had thought. Keeping it a secret no longer bothered the beast, for it had kept it for far too long and many did not appreciate what it has been guarding.


When the boy stopped at the largest and closest town, the one that he was said to have lived in, he gave up the fortune for a chance to live a normal life. He knew he would have to give it up if he was to be free to live his own life, and it did not pain him to do so. Before the ordeal with the dragon, he was merely a stable-hand, with no lands of his own and no hope for a promising future.


Afterwards, he lived a life of luxury.


The treasure that was given to the church that day cannot not be seen by mortal eyes – its existence all depends on secrecy. It is safe now, in the largest church in Garduin. A large orb of light sits inside its box, held aloft by twisting gold marble serpents with crystal eyes; the chest that the dragon had been safeguarding, and this light—this being—is what will secure the future of our world. It is our god’s gift to our people—and what we do with it is up to us. It will either start a war, or help us prosper.


Of course, this is just a legend. We tell them—those who come seeking the treasure taken from the dragon—that there isn’t really a reptilian egg waiting in the catacombs of Garduin. But there is. And only we know of its existence.


Published in Industry News
Friday, 23 November 2012 10:19

Brain Growth & Preemies

Neuroscientists in the US have found that the rate of brain growth in the weeks before preterm babies reach their expected due date is related to their cognitive (thinking and learning) abilities as children. It was found that between 24 to 44 weeks postmentrual age (PMA) that the rate of cerebral cortical growth is able to predict complex cognitive functioning but not motor skills in later childhood. Postmentrual age refers to your preemies gestational weeks plus their chronological age.

The study involved performing a magnetic resonance imaging (MRI) scan of the brain of 82 preterm infants up to 8 times. They also took part in a battery of neuropsychological tests at age 2 and 6 years.

The results indicate that the period before a full term brith, the last gestational weeks in the uterus, are critical for brain development, so for preemie babies the more the cerebral cortex grows early in life the better their outcome when they reach 6 years of age.

Published in Industry News
Sunday, 21 April 2013 12:50

Live Music Benefits Preemies

A large study in the US as found that live music can be beneficial to preterm babies.

The study was lead by Beth Israel Medical Center in New York City and involved 11 hospitals. Music therapists helped parents of preemies change their favorite tunes into lullabies.

The researchers have reported that live music, played or sung, helped to slow preterm infants' heartbeats, calm their breathing, improve sucking behavior, which are important for feeding, aid sleep, and promote states of quiet alertness. These factors are important as reducing stress and stabilizing vital signs allows preterm infants to dedicate more energy to growing and developing.

One reason which might explain how live music helps preemies is that music is organised, purposeful sound amid the unpredictable, overstimulating noise of neonatal intensive care units (NICU). Sounds can be damaging but meaningful noise is important for a baby's brain development.

Future research may look at how benefits in heart rate and respiratory rate, as a result of live music, affect clinical improvements such as removing oxygen or feeding tubes sooner.

Another benefit observed from this study was that parent preferred lullabies, sung live, can enhance bonding and thus decrease the stress parents experience when caring for a preemie baby.

Published in Industry News
Monday, 10 December 2012 17:45

L’il Aussie Prems Foundation

L’il Aussie Prems Foundation is Australia’s largest online support community and forum for families of prematurely born children and sick newborns. They are a voluntary not-for-profit organisation set up to provide online support, raise awareness, bring parents together who have traveled a similar path whilst encouraging families to share their personal and unique journey through our website. No matter where families are located geographically, our website and support services are assessable 24 hours a day, 7 days a week.

The Foundation’s website was initially established in 2007 by a premmie mum who gave birth to her first son at 27 weeks gestation. The forum and website continue to offer a lifeline to families. In October 2012, with the goal of expanding the online support provided to families, L’il Aussie Prems Foundation became a registered charity, incorporated in the state of Victoria.

The Foundations committee members are all parents who have each experienced a very personal and unique journey after the premature birth of their children. As members of the forum community for many years, they each understand the vulnerability parents feel in a similar situation, the importance of an online community and the integral role the Foundation plays with offering a safe and supportive environment to each family.

Published in Industry News
Saturday, 21 April 2012 13:32

Controversial: Too Small?

"I missed out on that joyful, happy moment that most people have, because I was so profoundly overcome with, she's so early."

A sentiment many parents of preemies will no doubt relate to. Every now and then, you will read articles in the news, or there might be a story on TV that discusses the issue of, “How small is too small?”

Medical and technological advances have ensured the chance of preterm babies surviving have increased significantly over the past 20 years, further still the limits of what babies at what gestational age can survive are often pushed to the extreme. Preterm babies born less than 25 weeks, sometimes called micropreemies, can invoke discussion about the moral, ethical, and financial ramifications of pushing for survival at any cost. This is true for doctors and parents themselves. For example, the question, “what level and type of care should be provided to the tiniest preterm babies?”, is often posed.

In Japan, babies born at 22 weeks are considered capable of sustaining life, in Australia, the attitude is to try an actively give the baby a chance of survival, whereas other countries advocate for “compassionate care” prior to 25 weeks gestation due to the low chance of survival. In Sweden, Norway, Finland, they don't resuscitate a baby under 25 weeks’ gestation. They say we're going to use that money for prenatal care. In the United States, babies born at 22 weeks are not resuscitated. At 25 weeks, every baby is resuscitated because more than 75% survive.

Despite the fact that medical advances improve the chance of a preterm baby surviving at younger and younger gestational ages; the stats still are not great for the tiniest of these babies, the questionable zone is usually 23 to 24 weeks; preemies born at 23 to 24 weeks have around 15-40% chance of survival but for those micropreemies who make it they also have a 30-50% chance of having a severe disability, such as cerebral palsy, intellectual impairment, blindness, deafness, or a combination of these, and a further 25-40% will have mild to moderate disabilities such as subtle forms of visual impairment, mild cerebral palsy affecting motor control, chronic asthma, learning difficulties, and behavior problems like attention deficit disorder.

Some parents of babies born at 22 weeks want everything done possible to help their baby survive, while sometimes parents of babies born at 23-24 weeks ask that nothing aggressive be done. It can be a very difficult decision for parents to make. The overwhelming portrayal of preterm babies in the media is the “miracle survival” of such tiny babies. It is rare for discussion of the potential long-term difficulties associated with such an early birth. Phyllis Dennery, chief of neonatology and newborn services at the University of Pennsylvania and Children's Hospital of Philadelphia, explains that "It's very dangerous to make this out to be a wonderful success, the reality is often quite different."

Often part of the discussion revolves around the costs involved in keeping these tiny preemie babies alive and the ongoing cost of their treatment and care. According to some estimates the average cost of care of a preterm baby in the neonatal intensive care unit (NICU) is US$4,000 to $5,000 per day. In the United States the estimated annual societal economic burden associated with preterm birth was in excess of $26.2 billion in 2005, or $51,600 per infant born preterm. For some countries such as Sweden, Norway, Finland, that don't resuscitate a baby under 25 weeks, instead advocate the use of that money for prenatal care of babies with a better chance of surviving and better chance of long-term outcomes.

A major issue is that many people don’t understand the consequences, both short- and long-term of giving birth too soon. Once a preterm baby survives many think that’s the end of it.

"We tend to think that prematurity is a problem that the minute you walk out of the nursery it's over. That's the furthest thing from the truth. More and more studies are coming out that there are long-term consequences of prematurity. If you look at lung growth, brain growth, these are all altered by the fact that you are born too early. Prematurity is with you for the rest of your life."

Published in Industry News
Wednesday, 20 March 2013 17:06

Wear Green for Premmies

A SEA OF GREEN IN SUPPORT OF PREMMIE BABIES

Last year saw the phenomenal success of the annual ‘Wear Green for Premmies’ day, an event hosted by the L’il Aussie Prems Foundation and organisers are looking forward to this year’s fundraiser and hope to repeat that success again on Wednesday 3rd April 2013.

Wear Green for Premmies is a day where thousands of people in Australia and around the world wear green clothing or purchase wristbands to show their support and raise awareness of the trials and hardships of premature babies and their families.

Over the past two years, members and their families have joined in the celebration with photos being posted on the event's page to show a sea of green in support of all children born too soon. Last year saw thousands of Facebook participants including eight hospitals and many businesses showing their support.

Part of the proceeds from wristband sales from the past two years of celebrations has been equally distributed to charities and causes all over the country but this year proceeds will be used to purchase items and are being donated directly to 2 Special Care Nurseries and 2 Neonatal Intensive Care Units all for the benefit of affected families. Participants don't have to attend a physical event, but are invited to sign up to the Facebook event and encourage family and friends to wear green, purchase a wristband and fundraise online directly to support the cause.

Now entering into its third year of celebrations, the event and website has grown well beyond the expectations of Ms Toivonen who started the support website in 2007 after the premature birth of her first son at 27 weeks gestation. Ms Toivonen built the online support group as a way to reach out to new parents but also for her own family to gain support from others who had travelled a similar journey.

In late 2012, a committee was formed and the website soon became a registered not-for-profit charity. The committee comprises of parents themselves who are all long time members of the online community. The website and forum has blossomed over the past six years into Australia's largest online community and forum for families with prematurely born children and sick newborns.

For photo opportunities with families in your state or further information: Nicole Powell, Vice President (Communications), L’il Aussie Prems Foundation 0412 378 793 I This e-mail address is being protected from spambots. You need JavaScript enabled to view it | Wantirna, Victoria


Preemiehelp is interested in hearing from you, please feel free to email us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or visit our Facebook page by following this link

Published in Industry News
Friday, 10 May 2013 14:01

Preemies School-age

Extremely preterm babies or extremely small prems are still behind their term born counterparts in relation to intellectual, educational, and behavioral outcomes by the time they reach school-age.

A study conducted in Victoria led by the Royal Women's Hospital followed up 189 extremely preterm or extremely low birth weight babies (less than 28 weeks gestation or weighing less than 1,000g) and 173 term born children at school-age. The areas assessed were intellectual ability, spelling, reading, mathematics, and a range of behavioral outcomes.

They found that 71% of the preterm born children had a cognitive, educational, or behavioral impairment at 8 years of age. In addition, up to 47% showed multiple areas of concern. These rates are much higher than that of the term born group which was 42% and 16% respectively. The major areas of concern were reading and spelling impairment which were double the rates in preemies compared with children born full term. The researchers also reported that 15% of the prems had a significant neurosensory impairment such as cerebral palsy.

Parents also completed questionnaires about their children which revealed that the preterm group had more behavioral problems including higher rates of hyperactivity, inattention, emotional problems, and peer relationship problems.

The positive message from this research is that the majority of babies born so early and small are now surviving without major disabilities.

This research highlights the need for early identification of children likely to have difficulties and early intervention strategies need to be employed to help these children before school-age.

Published in Industry News
Tuesday, 29 April 2014 09:44

Preemies & Argan Oil

What’s so Good about Argan Oil?

Often called ‘liquid gold’, Argan oil is an organic product produced from an Argan nut coming from Argan tree, which only grows in Southwestern Morocco. Scientific analysis shows it is high in essential fatty acids Omega 6 and 9 to moisturise, maintain hydration and reduce inflammation. Argan oil is also very high in skin repairing antioxidants such as Vitamin E (twice the level of olive oil), carotenes, squalene and phenols. Its anti-oxidant effect makes argan oil the ideal anti-aging product. It restores elasticity and leaves skin feeling plumper and softer.

The active substances called triterpenoids that occur in Argan Oil offer amazing skin protection benefits. These include tissue healing (scars), anti-inflammatory, sun-protective and disinfectant properties.

The oil contains 80% unsaturated fatty acids and is more resistant to oxidation than olive oil. Argan oil also contains 0.8% unsaponifiables (a large group of compounds also known as plant sterols or sterolins). Sterolins improve skin metabolism, reduce inflammation and promote excellent moisture retention. The antioxidants in Argan Oil are generally beneficial for healing skin which is irritated, cracked, damaged, or even burned. It is best used as a preventative for dry or sore skin, but it can also be used to speed up healing. Its properties include reducing inflammation, soothing pain, and increasing healing rate. It absorbs easily and is non-greasy and non-irritating, which makes it a great natural moisturiser.

Because preemies are often so fragile whilst in the NICU our products focus on skincare after preemie baby is medically stable. After preterm babies leave the NICU their skin is often still very dry and flaky and requires ongoing attention to keep it hydrated, soothed, and protected. Working with experts in the area of skincare, we have been able to formulate a range of products that target some specific needs of preemies. Our products are perfect for when baby comes home.

The entire Gentl skincare range for preemies and preemie parents only includes natural substances such as organic argan oil and/or ingredients that have been assessed by the Cosmetic Ingredient Review (CIR) Expert Panel and found to be safe for cosmetic use.

Published in Industry News
Sunday, 09 March 2014 12:26

New Preemiehelp Store!

Preemie Help is very excited to announce the launch of our Preemie Store!! We invite everyone to visit our site here and check out our cool gear. We have a range of products especially for preemies as well as gorgeous gifts for wonderful preemie mothers, or really anyone you think might deserve a special treat!!

 

Preemiehelp have had preemie clothes designed especially for preemies with a range of cool and cute designs.

Published in Industry News
Tuesday, 25 September 2012 20:06

Pacemaker to Stop Premature Birth

The latest in scientific research sees a "pacemaker" being developed to help prevent premature birth!

The "pacemaker" is composed of electrodes which deliver mild bursts of electricity to stop muscles in the womb contracting - it has recently just completed a clinical trial.

The rates of premature birth have been increasing putting more babies at risk for short and long term health difficulties so more and more research efforts are being put behind ways to help prevent preterm birth.

Published in Industry News
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AlbertEinstein_iconOne of the greatest minds in history, Albert Einstein was born preterm.

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Preemie, Premmie, or Prem?

Most babies spend between 38 and 42 weeks in their mother’s uterus. So, technically a preterm birth, preemie, premmie, or prem, is an infant who is born less than 37 completed gestational weeks. 


Read More: Defining Preterm birth


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New Release - Preemie Development

All in one easy to read eguide

‘The complete preemie guide to: ‘Preemie development’ is the must have guide to the NICU for new preemie parents.

With an easy-to-read layout this comprehensive guide is over 130 pages of important information about the NICU and your preemie.

Using Adobe’s .pdf format makes the guide usable across a wide range of platforms from ipad to PC, smartphone to macbook.

Packed with extra features like progress charts, NICU checklists and plenty of others. ‘The preemie guide’ is a must for any new parents.


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