Help & Support - a quick look

quick look preemiehelp

Parenting a preemie can be tough and it's important to find ways of coping and looking after your own health. It can also make you feel more in control if you can learn some great strategies to help with your prem's learning and development.


Finding a balance and a way forward

Parenting a preemie can be challenging and is a significant life transition. It is important that you find time and ways of taking care of your own health and wellbeing. Eating well, staying fit and healthy, and getting enough rest and relaxation are vital for optimal health. Maintaining and caring for relationships, especially with your partner is also important. If you need it, don't discard the option of professional assistance. Also, find advice about optimizing development and learning strategies to help with thinking & behavior difficulties.

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Bereavement and preterm birth

It is a very challenging and often a traumatic time, watching your preemie so small and fragile fight for his/her life; your worse fear is that they may not win the fight.

Many parents have described the fear of losing a baby makes them reluctant to become too attached but also describe the instinctive pull towards needing and wanting to nurture and protect their baby. The emotional turmoil parents feel is extreme and support from friends, family, and professionals is essential.

If your preemie baby has lost the fight and dies in the NICU, there will be a room where you are able to spend some time with him/her alone.  NICU staff will probably ask you if you want to wash and dress him/her.  Everyone has different ways of coping and what sorts of things they would like to do, and keep, to help them deal with, and remember their little preemie.  With the parent’s permission, NICU staff will take photographs of your baby for you to take home or they may give you a memento card with foot or hand prints and a lock of hair.  You may choose to take other mementos that have meaning for you and remind you that your baby is a part of your family, such as your baby’s name tag, bonnet, or booties.

Sometimes a post mortem is necessary so the neonatologists and obstetrician can explain to you why your baby died.

Although hospitals differ, they usually have a number of different faith-based sacred spaces or chaplaincies, with various people who are available to provide support if and when you need it.

Staff in the NICU can give you guidance and connect you with people who will help prepare a funeral or service for your baby.  They can also connect you with mental health care professionals, such as clinical psychologists and counsellors, as well as organisations that have specific expertise to help you through such a traumatic time.

Bereavment Support Organisation

click on the links below to visit these great resources.


SANDS Australia: Stillbirth & Neonatal Death Support
Bonne Babes


Center for Loss in Multiple Birth (CLIMB)
Bonne Babes

New Zealand
Center for Loss in Multiple Birth (CLIMB)

SANDS New Zealand: Stillbirth & Neonatal Death Support

United Kindom

Child Bereavement Charity
SANDS: Stillbirth & Neonatal Death Charity
The Child Death Helpline

United State of America

Angel Names Association
A place to Remember


We are always looking for more resources if you know of any please let us know.



AlbertEinstein_iconOne of the greatest minds in history, Albert Einstein was born preterm.

Help us help you!

help us help you! is here to provide preemie information, community and solutions to the people that need it most... you!
Preemie Help is also looking to provide a resource for any professionals that have contact with preterm babies and children in order to help them best understand the challenges that face a preemie. Get in contact to help us impact preemies.

Preemie, Premmie, or Prem?

Most babies spend between 38 and 42 weeks in their mother’s uterus. So, technically a preterm birth, preemie, premmie, or prem, is an infant who is born less than 37 completed gestational weeks. 

Read More: Defining Preterm birth



New Release - Preemie Development

All in one easy to read eguide

‘The complete preemie guide to: ‘Preemie development’ is the must have guide to the NICU for new preemie parents.

With an easy-to-read layout this comprehensive guide is over 130 pages of important information about the NICU and your preemie.

Using Adobe’s .pdf format makes the guide usable across a wide range of platforms from ipad to PC, smartphone to macbook.

Packed with extra features like progress charts, NICU checklists and plenty of others. ‘The preemie guide’ is a must for any new parents.